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The 2nd DeLIVER Newsletter

Dear PEARL PIs and nursing leads,

 

We hope everyone had a super Easter break and bank holiday weekend. This is our second PEARL STUDY newsletter with an update as promised- Below is the latest “data” extracted from the bioanalysis portal directly at the end of last week.

 

Aetiology 2

 

Congratulations to the teams at Plymouth (Matthew C) and Georges (Dan F) for getting underway. And to Hull and Oxford for ongoing recruitment. It feels a way off yet before we meet the 3000 patient target — but great to be off the ground.

 

A reminder to sign up to the Face to Face study day Wednesday June 8th in Oxford -PIs, nurses and other key staff all welcome. We will reimburse reasonable travel costs and provide a nice lunch. We will discuss the study, but also some scientific findings from or relevant to the DeLIVER program -mostly it will be chance though to meet each other face to face. A list of sites that are coming is given below-would be great to see you all-drop us a line if you need more info/the invite resending etc.

 

As always, we are now on standby now to make the study as easy as possible to recruit to, and welcome feedback in real time of any issues regarding the study protocol, blood sampling or shipment of samples — and we will aim to fix these rapidly. So do drop us a line if things can be improved— we will welcome all reasonable complaints.

 

Site

PI

mNCA Status

C&C Approved

SIV

Green Light Issued

First Patient Recruited

Oxford

Ellie Barnes

Fully Executed

Yes

Performed

Yes

23/02/2022

Hull

Lynsey Corless

Fully Executed

Yes

Performed

Yes

24/03/2022

Plymouth

Matthew Cramp

Fully Executed

Yes

Performed

Yes

13/04/2022

St George's

Dan Forton

Fully Executed

Yes

Performed

Yes

26/04/2022

Kings

Kosh Agarwal

Fully Executed

Yes

Performed

Yes

Wycombe

James Maggs

Fully Executed

Yes

Performed

Yes

Brighton

Sumita Verma

Fully Executed

Yes

Performed

Yes

Bradford

Sulleman Moreea

Fully Executed

Yes

Performed

Yes

C&W

Matthew Foxton

Fully Executed

Yes

Performed

Yes

Nottingham

Steve Ryder

Fully Executed

Yes

Performed

NNUH

Simon Rushbrook

Fully Executed

Yes

Performed

Leeds

Ian Rowe

Fully Executed

Yes

Performed

Middlesbrough

Darren Craig

Fully Executed

Yes

Performed

County Durham & Darlington

Francisco Porras Perez

Fully Executed

Yes

Performed

Imperial

Nowlan Selvapatt

Fully Executed

Yes

Performed

Cornwall

Zoe Berry

Fully Executed

Yes

Arranging

Basingstoke

Kamran Ala

Fully Executed

Yes

Booked

East Kent

Jayshri Shah

Partially executed

Arranging

Portsmouth

Richard Aspinall

With local R&D

Performed

Liverpool

Tim Cross

With local R&D

Sheffield

Laura Harrison

With local R&D

Bristol

James Orr

With local R&D

Royal London

Janet Dearden

With local R&D

Royal Free

Aileen Marshall

With local R&D

Birmingham

Tahir Shah

With local R&D

Guys and St Thomas'

Bo Wang

With local R&D

Southampton

Mark Wright

With local R&D

Derby

Andrew Austin

With local R&D

Bournemouth

Safa Al Shamma

With local R&D

Gloucester

Coral Hollywood

TBD

Leicester

Ka-Kit Li

TBD

Newcastle

Stuart McPherson

TBD

Manchester

?Martin Prince

TBD

Cambridge

Mike Allison

TBD

Basildon

TBD

 

PEARL recruitment 2

 

Best Wishes,

Ellie, Will, Jenni, Andy and James