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The 5th DeLIVER Newsletter

Dear PEARL PIs and nursing leads,

 

We are now 184 patients recruited towards our target, and I wanted to take the chance to thank you again for the ongoing efforts.

I know James and Jenni have been flat out with new sites and SIV, so a welcome to those who have recently joined.

 August may be a slighter quieter month with holidays, but please do let us know if there is anything we can do to support recruitment at this end.

 

The distribution by disease aetiology is similar as the numbers increase.

Aetiology 5

 

Site

PI

mNCA Status

C&C Approved

SIV

Green Light Issued

First Patient Recruited

No. Patients Recruited

Oxford

Emma Culver

Fully Executed

Yes

Performed

Yes

23/02/2022

48

Hull

Lynsey Corless

Fully Executed

Yes

Performed

Yes

24/03/2022

11

Plymouth

Matthew Cramp

Fully Executed

Yes

Performed

Yes

13/04/2022

20

St George's

Dan Forton

Fully Executed

Yes

Performed

Yes

26/04/2022

13

Kings

Kosh Agarwal

Fully Executed

Yes

Performed

Yes

29/04/2022

12

Bradford

Sulleman Moreea

Fully Executed

Yes

Performed

Yes

11/05/2022

11

C&W

Matthew Foxton

Fully Executed

Yes

Performed

Yes

11/05/2022

27

Brighton

Sumita Verma

Fully Executed

Yes

Performed

Yes

13/05/2022

2

Middlesbrough

Darren Craig

Fully Executed

Yes

Performed

Yes

26/05/2022

16

Imperial

Nowlan Selvapatt

Fully Executed

Yes

Performed

Yes

30/05/2022

12

Leeds

Ian Rowe

Fully Executed

Yes

Performed

Yes

06/06/2022

2

Nottingham

Aloysious Aravinthan

Fully Executed

Yes

Performed

Yes

07/07/2022

4

Wycombe

James Maggs

Fully Executed

Yes

Performed

Yes

11/07/2022

1

Basingstoke

Kamran Ala

Fully Executed

Yes

Performed

Yes

21/07/2022

1

Liverpool

Tim Cross

Fully Executed

Yes

Performed

Yes

22/07/2022

1

Co. Durham & Darlington

Francisco Porras Perez

Fully Executed

Yes

Performed

Yes

01/08/2022

2

Portsmouth

Richard Aspinall

Fully Executed

Yes

Performed

Yes

28/07/2022

1

NNUH

Simon Rushbrook

Fully Executed

Yes

Performed

Yes

East Kent

Jayshri Shah

Fully Executed

Yes

Performed

Yes

Cornwall

Hannah Osborn

Fully Executed

Yes

Performed

Aintree

Nick Stern

Fully Executed

Yes

Performed

Bristol

- Weston

PI Gau Appanna

Sub-I Andrew Bell

Fully Executed

Yes

Performed 

Southampton

Mark Wright

Fully Executed

Yes

Booked

Royal Free

Aileen Marshall

Fully Executed

Yes

Performed

Bournemouth

Safa Al-Shamma

Fully Executed

Performed

Royal London

Janet Dearden

Fully executed

Derby

Andrew Austin

Fully executed

Booked

Guys and St Thomas'

Bo Wang

With local R&D

Newcastle

Stuart McPherson

With local R&D

Royal Devon

Christina Levick

With local R&D

Sheffield

Laura Harrison

With local R&D

Birmingham

Tahir Shah

With local R&D

Leicester

Ka-Kit Li

With local R&D

Gloucester

Coral Hollywood

TBD

Manchester

?Martin Prince

TBD

Cambridge

Mike Allison

TBD

Basildon

TBD

Whittington Health

TBD

Total Patients Recruited

184

 

Best Wishes and happy holiday season.

Ellie, Will, Jenni, James and Andy